Mason Harrell

Mason Harrell's Fundraiser

Driving Progress for Kleefstra Syndrome Research image

Driving Progress for Kleefstra Syndrome Research

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$26,425 towards $300,000

I feel fearful for Eleanor’s future; as many of you know, regression often occurs in individuals with Kleefstra Syndrome. I have many different feelings about the future. A part of me has been holding myself back from asking for help from anyone because I feel like I could be doing more. There is so much to do, but overall, research to find a treatment for Kleefstra Syndrome is making strides.

I appreciate the freedom of making a choice in how you may support, so whether it is via a direct money donation, a fundraising event, or a personal outreach, please do what you feel is right for you. My goal is to drive treatment development and prevent regression for our loved ones with Kleefstra Syndrome. Thank you for your friendship and support--it means the world to us!