Yvonne NG

Yvonne NG's Fundraiser

Driving Progress for Kleefstra Syndrome Research image

Driving Progress for Kleefstra Syndrome Research

Join us in supporting Toby and his Kleefstra family!

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$1,410 towards $500

Join me in making a difference for families like mine! Let’s support good in the world and make a difference. This is our opportunity to SHINE! We meet challenges and overcome them! We enjoy the little things, and we celebrate on our journey. We are inspired and motivated by those living with Kleefstra Syndrome, and this is the platform for them to shine! Your support helps develop care, community, and research initiatives that will continue to make these opportunities possible for IDefine!


Many of you are aware that Toby has a rare genetic condition called Kleefstra Syndrome (KS). Since this condition is so Rare, there are still so many unknowns as he continues to grow and develop (including possible regressions. The more research put towards investigating this condition, the more we can prepare and understand how to help him live his life to the fullest.


On September 17, we celebrate Kleefstra Syndrome awareness. This campaign is in recognition of the upcoming awareness day. Just a small donation will go a long way to helping me meet my goal for IDefine! In just a few short years, iDefine has made a world of difference by putting Kleefstra syndrome on the map. Let’s keep up the momentum to help advocate on behalf of KS families!

Thank you for your support! 💜

-Toby and family