Valerie Lascano

Valerie Lascano's Fundraiser

Driving Progress for Kleefstra Syndrome Research image

Driving Progress for Kleefstra Syndrome Research

Join me and help make a difference, please give today.

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Hey friends and family! It's that time of the year again to join us in support of Kleefstra Syndrome Awareness Day, which falls on September 17th. This is our 3rd awareness day since Landon's diagnosis and it hits so differently than it did that first year. The first year had so many unknowns. So many what ifs. So much pain.

Here we are 3 years later surviving and thriving with our little firecracker, Landon. While he is doing great and hitting new milestones all the time, it would be a great injustice to say that it is easy for him to live with Kleefstra Syndrome. It would be an even bigger injustice if we didn't acknowledge those living with this syndrome who struggle much more than our guy does. Our KS community has many kids and adults who are unwell and have daily battles just to survive. Standing with them are some amazing parents who are struggling to make it to the next day in one piece, because it is hard being the parent of a child with special needs. Believe me when I say that this community consists of some of the greatest people I have ever known.

So, I am asking, if you find it in your heart. Please donate to my fundraiser for IDefine. Your support helps develop care, community, and research initiatives that will benefit those living with Kleefstra Syndrome.

Just a small donation will go a long way to helping me meet my goal for IDefine! There truly is no amount too small.