Andy Klump's Fundraiser
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A supporter of Andy Klump
I donated in support of this campaign.
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Nitzan Shaer
"Sending warm wishes to Natalya and the entire community. "
$500
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Chuck Cotter
I donated in support of this campaign.
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Trent Kososki
I donated in support of this campaign.
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David Thacker
I donated in support of this campaign.
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Brian Gottlieb
"Thank you for your leadership in working to find a cure for Kleefstra syndrome. It’s an honor and a pleasure to be able to contribute."
$500
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Olav Junttila
I donated in support of this campaign.
A supporter of Andy Klump
I donated in support of this campaign.
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Chad Freese
I donated in support of this campaign.
$2,000
A supporter of Andy Klump
I donated in support of this campaign.
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Philip Kaufman
I donated in support of this campaign.
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Markus Wilhelm
I donated in support of this campaign.
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Béla Hanratty
I donated in support of this campaign.
$50
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Miguel Prado Balboa
"Prado Family donated in support of this campaign. "
$1,000
A supporter of Andy Klump
I donated in support of this campaign.
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Gail and Matthew Hoffman
I donated in support of this campaign.
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Art Fletcher
"Andy's efforts have helped so many of us through the years so it's an honor to be able to give back to he and his family through this worthy cause."
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Jeff McDermott
I donated in support of this campaign.
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Matt McDonald
I donated in support of this campaign.
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Clark Maine
"Best of luck Natalya! 加油！"
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Jacob Edie
"Best of luck with the fundraising!"
A supporter of Andy Klump
I donated in support of this campaign.
$5,700
A supporter of Andy Klump
I donated in support of this campaign.
$500
A supporter of Andy Klump
I donated in support of this campaign.
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Max Elghandour
"As a parent of a special needs son (autistic) and a very close friend with Andy, Lindsay, and the girls, especially Natalya, I am honored to support."
$1,000
A supporter of Andy Klump
I donated in support of this campaign.
$5,000
A supporter of Andy Klump
I donated in support of this campaign.
$500
A supporter of Andy Klump
I donated in support of this campaign.
$500
A supporter of Andy Klump
I donated in support of this campaign.
A supporter of Andy Klump
I donated in support of this campaign.
$50,000
The Cutler Foundation
I donated in support of this campaign.
$2,500
As you know, our journey began with KS started with Natalya’s birth and 2-month hospital stay in early 2013. Learning that Natalya’s rare disorder was caused by a spontaneous mutation of a single, vital gene called EHMT1, and that there was no cure, was the kind of news no parent wants to hear. The devastating daily reality of KS means our children face profound challenges, including significant cognitive impairment, difficult-to-control seizures and uncertainty for independent living. The burden on our families is immense, and the need for a solution is urgent.
Lindsay and I refused to stand still and met an HBS alum based in Toronto with a KS son. Together, we co-founded KIDS IQ Project in 2015, a Canadian charity who helped raise $1.9M over 5 years which were directly given to research organizations focused on finding a cure. After meeting with 4 other US based co-founders of IDefine, we decided to concentrate our fundraising efforts in the US and two of these fathers, Eric and Geoff, dedicated their full time endeavors to running this 501c3. Over the past five years, we successfully built IDefine into a "Research Ready" organization, establishing the Kleefstra Clinic at Boston Children’s Hospital, assembling a world-class Scientific Advisory Board (SAB), generating cellular models (iPSC’s) and 3D models (so-called “organoids”) of KS, and gathering foundational clinical data through a recent $300k investment into a 3 year Natural History Study. Collectively, we’ve raised $2.1M and are planning to conclude the year with another record total.
All the pieces we have put in place over the last five years have enabled our next big push: developing a treatment.
Our Goal: We want to raise $150,000 of the $500,000 by December 31st.
Our effort will immediately fund a three-pronged scientific attack designed in consultation with our SAB. This research is more than a set of projects: this plan is a coherent strategy that gives us multiple paths to bring real-world, tangible improvements to children with KS, such as better communication, reduced seizures, and improved sleep while combating the biggest fear of many: a period of “regression” that can result in episodes of psychosis and the loss of skills and abilities our kids have worked so hard to develop, often occurring during their teenage years that Natalya has started.
This coordinated approach complements our ongoing work and provides multiple paths to accelerate life-changing treatments. Every dollar you contribute directly funds scientists working on these breakthroughs, moving us past the devastating diagnosis and towards the possibility of a healthier, fuller life for our children.
Join me in supporting real change. Let’s support good in the world and make a difference.