Help Us Rally for Rare: Dinking to Cure Rare Disease

Help me help kids with rare disease

Hi all,

On February 28, Rare Disease Day, I am hitting the courts at PinPoint Indoor Pickleball & Golf for the "Rally for Rare" Tournament. This event is a personal mission to support a 13-year-old girl in our community, Adelind, and the hundreds of children living with a rare disease called Kleefstra Syndrome (KS).

KS is a rare genetic disorder that impacts development and health, yet research for a cure remains critically underfunded. I have joined this fundraising challenge to support IDefine, The Kleefstra Syndrome Foundation. and their work accelerating vital gene therapy research, clinical trials, and clinical centers of excellence.

Check out my fundraising page and please consider making a donation to help me reach my goal of [Your Fundraiser's Goal Will Automatically Go Here].

Give today.

Your support will make a real difference. I appreciate your help!

[Your Fundraiser's Name Will Automatically Go Here!]

I just started a fundraiser for Rare Disease Day! Help me reach my goal to accelerate treatments and cures

Thanks for being generous!

Hi [Donor Name],

Thank you so much for your generous donation to my fundraising campaign for IDefine, The Kleefstra Syndrome Foundation. Because of you, IDefine will be able to accelerating vital gene therapy research, clinical trials, and clinical centers of excellence so that every child with Kleefstra syndrome has access to transformative treatments and a path toward a cure. You're not only helping me to reach my fundraising goal, but you're making a real difference for Adelind and hundreds of children worldwide living with this rare disease.

This is such a worthy cause and I'm proud that we're on the same team. I recommend that you check out IDefine. They're doing great work.

Thanks again for your donation!

[Your Fundraiser's Name Will Automatically Go Here]

Huge thank you to everyone who has donated to my Rally for Rare fundraising page. Because of your generosity, our team is climbing the leaderboard and—more importantly—we are fueling vital research for IDefine.