2026 Karaoke for Kleefstra

We host Karaoke for Kleefstra each year in honor of our daughter, Charlotte, who was diagnosed with Kleefstra Syndrome in 2022. Kleefstra Syndrome is a rare genetic condition caused by changes to the EHMT1 gene and can impact cognitive functioning, muscle tone, speech, and many other aspects of daily life. Thanks to ongoing research, scientists are making meaningful progress toward clinical trials for treatments that could improve the lives of individuals living with Kleefstra Syndrome. Our goal is to raise both awareness and funding for this critical research, and if you can't join us at the event, we hope you'll consider making a donation to support this important cause.